Tag: sleep

I Don’t Pretend To Be Sick…I Pretend To Be Okay

I don’t know how many of you have an autoimmune disease, but the ones that do, know exactly what my title means. The amount of energy it takes to do anything at all is enormous, and it will take us days to recover.painpain-dark

Most of the time I find myself falling asleep if I sit down for any length of time. I don’t do it on purpose, my body just shuts down. I have learned to listen to my body, because when I don’t, I end up in the hospital.

My husband has been my rock. He is simply amazing. He does the laundry, washes the dishes, runs the sweeper and other numerous things. He knows that I simply can not do these things anymore. I do little things like dust, fold the towels and other small things. I don’t know how many times he has rescued me from myself. (Found me doing things that will disable me for days and stopped me.)

I have gotten a new rheumatologist that I saw a few weeks ago. My old rheumatologist and I didn’t see eye to eye on many things. One of which was pain. I have Gouty Arthritis (osteoarthritis, fibromyalgia, degenerative disc disease) which is extremely painful and when I am in a flair, my joints swell up with Uric Acid Crystals which you can actually feel through my skin. My new rheumatologist is wonderful. We are working together on a pain management plan that I am more than willing to try. So far…so good.

I am not writing this to complain. I am writing to inform others how people with an autoimmune disease feel. It is an invisible disease. You can’t see anything wrong with us, but trust me, there is plenty wrong. So when you hear someone say that they have an autoimmune disease, don’t downplay it and whatever you do, don’t offer any advice unless you have an autoimmune disease too…cause you just don’t know.

How Do You Know

How do you know?

How do you know when it is real or just a dream?

When you are running as fast as you can and still you hear it chasing you

so you run faster.

If it’s a dream, then why do you feel that little breeze

across your cheek like you are being softly touched as they passed you?

Why do you feel the fingers of fear running up and down your spine if

it is just a dream?

The sweat is running down your face soaking your shirt, you sit on the curb for just

a minute to collect your thoughts when you see a shadow in the street light.

The shadow moves toward you slowly at first then it picks up speed so you

get up and start running again.

You notice that the sky is getting lighter. It will be dawn soon, but that doesn’t stop

the shadow. It keeps coming.

All of a sudden you recognize your street and soon you see your house. You

run up the steps and unlock your door as quickly as you can. You are safe inside.

When you awaken, you lay there to collect your thoughts. Then you remember

your dream. Sitting up on the side of the bed, you see your running shoes, your

shirt is thrown across the chair.

Getting up, you check your shoes and they are wet and muddy and your shirt

is soaked. You gather them up to throw in the wash and out of the corner

of your eye, you see a shadow move quickly across the room.

Was it real, or just a dream? How do you know?

Restless Legs

I have RLS (Restless leg Syndrome). I have had it for about 4 years and lately the medication has kind of quit working. Tonight was particularly bad. I am going to call my doctor on Monday, but until then, do any of you have any pointers as to what I might try?  I would be ever so grateful to get a good nights sleep on occasion.

I have tried drinking dill pickle juice, tonic water with quinine, hot showers, icy hot, ice packs and tylenol to name just a  few things, and nothing is even beginning to cut it this time. My calves are at the stage of cramping up and are very painful. I have even tried walking with my cane around the apartment. The only thing walking does is to aggravate my back. So I stop walking for a while.

I am not usually one to complain about my physical problems, and I am sorry for that, but I sincerely hope that someone out there can give me a suggestion or two.

Thank you all so much for putting up with my little rant. I really need some relief and some sleep. pain